PDF) Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: A double ABCX model of caregiver stressors and perceived resources

PDF | Background: Duchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are recessive X-linked disorders | Find, read and cite all the research you need on ResearchGate

Testing the Family Health Promotion Model for Family Having Children with Duchenne Muscular Dystrophy/Spinal Muscular Atrophy

Frontiers Predictors of overload in parents of children with neuromuscular diseases

PDF) Perceived quality of life among caregivers of children with a

Assessing the impact on caregivers caring for patients with rare pediatric lysosomal storage diseases: development of the Caregiver Impact Questionnaire, Journal of Patient-Reported Outcomes

Linking specific biological signatures to different childhood adversities: findings from the HERO project

PDF) Perceived quality of life among caregivers of children with a

Self- and Caregiver-Reported Participation, Quality of Life, and Related Mood and Behavior Challenges in People Living With Dystrophinopathies - ScienceDirect

Instrumentos para avaliar a sobrecarga e a qualidade de vida de cuidadores

PDF) Impact of Raising Children with Rare Diseases on Parental Quality of Life and Family Functioning

Caregivers' Perceptions of Child Trauma Symptomatology, Stress, and Child Abuse Disclosures - J. Phillip Pemberton, Megan M. Letson, Farah Brink, Kathryn Wolf, Sandhya Kistamgari, Nichole L. Michaels, 2023

Needs management in families affected by childhood-onset dystrophinopathies - Kristin M Conway, Katy Eichinger, Christina Trout, Paul A Romitti, Katherine D Mathews, Shree K Pandya, , Muscular Dystrophy Surveillance, Tracking and Research

Characterizing the dimensional structure of early-life adversity in the Adolescent Brain Cognitive Development (ABCD) Study - ScienceDirect

Perceptions of caregivers and adolescents/young adults with cystic fibrosis regarding health care transition readiness during the COVID-19 pandemic: A qualitative study - ScienceDirect